The Iron Conference Report and Some Celtic Curse Support Notes

This is the first version of a post that will become longer when I get a chance to write more. As some readers will have noted from my tweets ( follow @CelticCurse on Twitter) the second weekend of October put me in Charlotte, North Carolina, for the Iron Conference, an event put together by the Iron Disorders Institute, an organization that has pioneered awareness of hemochromatosis an other iron-related disorders.

The Iron Disorders Institute was co-founded by Cheryl Garrison who has led patient advocacy for hemochromatosis sufferers for over a decade. The Iron Disorders Institute website contains a wealth of medically reviewed information about hemochromatosis, although you sometimes you have to dig a little to find it (there are a lot of PDF files there which you can download).

The organization is working on making the information more accessible and is developing a new site specifically for hemochromatosis: The Hemochromatosis Information Center. We strongly recommend you check it out. Together with Cheryl's books (listed on the right of this page) these resources can yield definitive, physician reviewed answers to many questions about hemochromatosis. However, if you have more questions, or want to discuss something with other folks who are dealing with Celtic Curse, consider joining the excess iron list or visit the Hemochromatosis page on Facebook. There is also an active support group on the Daily Strength website.

 The report on what we learned at the 2010 Iron Conference will be posted here soon...

Comments

Popular posts from this blog

Hemingway's Death and Hemochromatosis Awareness

Blood Variance and Hemochromatosis: Iron News from the Iron Disorders Institute

HFE testing: an open letter to the American College of Medical Genetics and Genomics