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Showing posts with the label Haemochromatosis Awareness Week

Heading to the seaside? Check your risk of infection from deadly saltwater bacteria before you go

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Walking on the beach is riskier for people with high iron levels For many people it's the perfect holiday: head to the seaside, take walks on the beach, eat fresh seafood, maybe wash down a few raw oysters with your favourite beverage. Sadly, these activities prove to be deadly for hundreds of people every year due to an increasingly common saltwater bacteria called  Vibrio vulnificus .  A key factor in fatalities due to Vibrio vulnificus is the anatomy of the patient. The risk of death is much higher in people with diabetes, liver disease, compromised immune systems, or hemochromatosis . That's why I am writing about this on the Celtic Curse blog. If you are suffering from iron overload due to hereditary hemochromatosis (genetic haemochromatosis in some countries), getting infected by the  Vibrio vulnificus  bacteria is truly life-threatening.  Vibrio vulnificus is considered one of the most lethal marine pathogens, causing severe wound infections and...

Haemochromatosis: it's genetic, hereditary, international, and treatable, but more awareness needed

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The 1st to the 7th of June is International Haemochromatosis Awareness Week ! Q.  What is the world's most prevalent genetic killer?  A.  Genetic haemochromatosis, a.k.a. hereditary hemochromatosis or HH for short. Q.   Why is HH a problem? A.   It can cause you body to accumulate too much iron, a harmful condition called iron overload . Q.  Can HH be cured?  A.  No. It is a genetic condition. Q.  Can HH be treated? A . Yes! There are ways to remove excess iron safely, at little to no cost. A person with the genetic defect that causes HH can live a fairly normal, healthy life IF the condition is diagnosed early and treated appropriately. That is why organizations have been formed, all around the world, to advocate for prompt HH diagnosis and proper treatment for all those affected. One of those organizations is Haemochromatosis UK , of which I am proud to be a member now that I live in the UK. When I lived in America I supported Iron Disorder...